autism

Static Bubbles: The Myths of Functioning Labels

Autism Community Use of Language
Written by Corina Becker

In the Autism communities, the terms “high functioning” and “low functioning” are used quite a lot. However, when asked, the communities are unable to agree upon defining criteria for each. This has led me to look for a clinical description for each, specifically for Autism. However, I was only able to find the Global Assessment of Functioning (GAF), which is not Autism specific but can be applied to all diagnosis in the DSM-IV-TR. 

The GAF does not use the terms “high” or “low” functioning, but uses a numeric scale from 0 to 100, based on a person's overall and cumulative rating in social, occupational, academic and psychological functioning. While it does include communication, it is not completely based on one's ability to speak. 

I recall that some of the community definitions used speaking and some used IQ as the defining criteria for functioning. However, there seems to be problems with that. For one, there are critics of IQ test results who say that IQ tests are only for measuring learning, not for assessing ability. Researchers have been critical of IQ tests towards Autistics since a lot of tests are language and cultural reference specific, and results are inaccurate. As for using speaking as a defining criteria, it has been noted that the ability to speak does not indicate ability to communicate and articulate, nor does it accurately represent abilities in other functioning areas.


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on December 15, 2011 at 7:23am


Diagnostic Tests for Autism May Miss Many Girls

The symptoms of Asperger syndrome look slightly different in girls than in boys, according to a study published earlier this month in Research in Developmental Disabilities1. This study and a spate of other recent ones suggest that with available diagnostic tests, higher-functioning girls with autism are being diagnosed either later than boys, or are altogether missed. 

In the new study, Swedish researchers showed that 18 new questions on a revised Autism Spectrum Screening Questionnaire lead to very different response profiles for school-age boys versus girls who have Asperger syndrome.


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on June 28, 2011 at 10:54am


Asperger Syndrome in the Media

It's not Rain Man, it's a SPECTRUM

 

Asperger Syndrome is a growing issue with children, as more and more are being diagnosed, and at earlier ages. Its acceptance has now become apparent in the media and how Aspergers and Asperger-like people are portrayed.

Having first hand experience with raising a child with Aspergers, you get to know the quirks of how your child operates. Not every Aspie is the same. They are described to be on a spectrum, ranging from one end to another (mild to severe) and how functional they are.

Primetime television in the last few years has introduced us a new group of TV characters who either have Asperger Syndrome or its characteristics. Whether you are a parent of an Asperger child, a sibling or a friend, you might recognize these following shows, which are making an attempt to portray aspie-like characters.

The Big Bang Theory is a wonderful show on CBS that documents the


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on January 15, 2011 at 1:46pm


Ari Ne'eman Appointed to the National Council on Disability

Written by Savannah Nicole Logsdon

Good News for the Autism community, and for the cross disability movement as a whole. Ari Ne'eman has been announced as one of President Obama's latest Presidential Appointees. He is currently awaiting confirmation by the senate for a position on the National Council on Disability. You can read the press release on the White House website here, as well as the names and Bios of other Appointees.


This is a big step forward for the Autism Community, particularly (but not exclusively) for the Neurodiversity movement. Ari has been pushing for the needs- and rights- of the Autistic community for years, and to have him appointed to the NCD is certainly the next move in his unrelenting efforts to promote our cause. He has also been involved in cross-disability efforts, an important thing to keep in mind.


Posted in:

on December 20, 2009 at 12:22am


Happy New Year!

Autism Women's Network 2011 Kudos to the Autism Community
Written by Sharon daVanport

Early April 2011 began with Rethinking Autism releasing their newest PSA: Autism Support Group. It was really great to see actress, and autistic advocate, Tammy Klein starring in the newly released Public Service Announcement. What an amazing message and rockin' video coming from Dana Commandatore and Michael Broderick's camp again! 

During the month of May we saw the release of one of the most widely acclaimed and honored autism documentaries, Loving Lampposts: Living Autistic. The film's director, Todd Drezner captures the diversity of autism, the community, and the many voices therein, by simultaneously shining a light on the many angles of autism and neurodiversity.

Then there were blogs, blogs and more blogs! In 2011, the autism community made an about face from years past when this year it insisted that blogging positive was the way to go for autism advocacy's future. The shining stars whom the autism community praised as 'getting it right' not only did so due to their authentic approach, but because of their honest style, and their insistence on hurting no one in the process. 

Perhaps the most buzzed about blogs are those of autistic advocate Rachel Cohen-Rottenberg's, Journeys with Autism: "Autistic Blogs" and "Positive Autism Parenting Blogs." Rachel explains, "The divide between autistics and parents can feel very deep and wide, but I’m determined to help bridge it by highlighting blogs that I feel do an excellent job of balancing the challenges of parents with respect for autistic people." 

Autism and Empathy: Dispelling Myths and Breaking Stereotypes is Rachel's other blog where she posts a variety of contributions from other bloggers as well as personally blogging herself in this richly vulnerable and honest format which lays bare the many colors of truth encompassing the autism spectrum via empathy, tolerance, and loving acceptance. 

New to the blogosphere is autistic advocate, and sex and disability blogger, Lindsey Nebeker. Lindsey's blog at Naked Brain Ink includes a recent post with an informative slideshow addressing the barriers which disabled people oftentimes face, and why sexual rights and disability advocacy matter.


Posted in:

on December 31, 2011 at 5:08pm


Pacific Rim International Conference

Pacific Rim International Conference on Disability & Diversity

March 26, 27 2012 || 8:00AM - 4:00PM

Honolulu, Hawaii Convention Center

Date: 
Monday, March 26, 2012 - 6:00am - Tuesday, March 27, 2012 - 2:00pm

ASPEN Spring Conference

Date: Sunday April 29, 2012

Time: 8:00AM - 4:30PM

Location: Hilton Woodbridge | 120 Wood Ave. South Iselin, NJ USA

Date: 
Sunday, April 29, 2012 - 6:00am - 2:30pm

Autistic Research Participants Needed

Autistic Research Participants Needed: Fleur Wiorkowski, an autistic PhD dissertation research student is seeking to bring the voices of those on the autism spectrum into the research conversation regarding higher education. 

If you are:

  • - an adult on the autism spectrum
  • - have attended college/university (at any time in your life - you don't have to be enrolled right now)

Posted in:

on December 5, 2011 at 7:42am


Liane Holliday Willey at AANE

Women with Asperger Syndrome: Staying Healthy and Safe

Saturday, December 3, 2011 from 9:15AM to 12:00PM Eastern Time, USA

AANE Main Office

51 Water Street, Suite 206, Watertown, MA 02472 

In sharing her inspiring story, Professor Liane Holliday Willey makes it clear that it is possibile to not only survive- but thrive. Addressing the trials and tribulations women with AS face that can endanger their happiness, self-esteem, and quality of life, Liane speaks from personal experience with predators, self-injury, depression, and anger. Sponsored by the Pomroy Foundation. 

This seminar is intended for women of all ages.

 

Live Broadcast Online 

Date: 
Saturday, December 3, 2011 - 7:15am - 10:00am

Liane Holliday Willey at AANE

Understanding, Supporting, and Living with Asperger Syndrome

Friday, December 2, 2011 from 9:15AM to 11:30AM, Eastern Time, USA

The National Heritage Museum

33 Marrett Road, Lexington, MA 02421

 

Professor Liane Holliday Willey shares her journey as a person with Asperger Syndrome and a parent of an Aspie. From her unique perspective, Liane will address the challenges peopel with AS face and provide practical support in improving communication skills, executive functioning, and emotional challenges.

More information can be found here.

Date: 
Friday, December 2, 2011 - 7:15am - 9:30am
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