My mom has been in ICU in critical condition for almost 3 weeks now and will most likely pass away soon. They have been giving her every possible medication and has been on 70-100% oxygen and yet she hasn't gotten better during this time, only worse. She has been medically sedated and at times medically paralyzed because the slightest movement decreases her oxygen levels. Since she is sedated she is not in pain but is not aware of me talking to her and generally appears in a comatose state (but she is really asleep as if she would be going to have surgery)
My mom already had asthma, diabetes, depression, sleep apnea, vertigo, 2 bypass surgeries and 2 bouts of Chronic Lymphocytic Leukemia. She went to the hospital with the flu, that turned into pneumonia, and that became Acute Respiratory Distress Syndrome (ARDS). She would have turned 63 on March 18th.
My father died when I was 16. So now I'm being asked to make decisions and authorizations for care, and she is almost at the point where there will be no hope for any improvement. So soon they will turn off the machines (probably Sat. unless she dies sooner) and she would pass away peacefully.
Autism & the Internet Survey: currently recruiting new participants for an online research survey regarding autism and the Internet. They are in need of relatives of autistic people (especially siblings and parents) and anyone who is 7 to 18 years of age ro participate.
Autism & the Internet Survey: currently recruiting new participants for an online research survey regarding autism and the Internet. They are in need of
Each time my self-advocacy is called into question by critics of the autism/neurodiversity movement, I close my eyes & see my mother's smiling face. My mother accepts me for who I am; she "gets me" and that means everything! I often wonder if the autism/anti-neurodiversity parent activists who choose to criticize and verbally attack autistic adults realize that we are someone's child? Have these critics stopped to realize that their child will one day be us, an adult on the autism spectrum?
Super soft socks with no seams for children with sensitivity differences!! I sooo wish they would have had these when I was a child, and I know my mother would have been grateful as well!
I can't remember how many times I would sit in the middle of the floor and scream my head off because i would not want to put my shoes on because of the seams in my socks!
Autism & the Internet Survey: currently recruiting new participants for an online research survey regarding autism and the Internet. They are in need of relatives of autistic people (especially siblings and parents) and anyone who is 7 to 18 years of age ro participate.
Each time my self-advocacy is called into question by critics of the autism/neurodiversity movement, I close my eyes & see my mother's smiling face. My mother accepts me for who I am; she "gets me" and that means everything! I often wonder if the autism/anti-neurodiversity parent activists who choose to criticize and verbally attack autistic adults realize that we are someone's child? Have these critics stopped to realize that their child will one day be us, an adult on the autism spectrum?
