Autism Speaks UK Announces A Name Change Effective Jan. 1, 2010
Autism Speaks cousin across the pond in UK has announced their name change effective as of Jan 1, 2010. Auti?stica
I wonder if they are having thoughts about distancing themself from the american group?? I actualy think that many people wheter they are kids or adult ASD o NT could benefit from nutrition. Some of the ideas are not always nutriionally sound or preactical. many people can not afford the foods or suppliments.
The divison so far as i unerstnd and i can be wrong, is that autism Speaks want to treat autism as a disease that must be removed and I for one do not think it is a disease but a diffent manner of being human, created and mantaind by nature for the benefit of all. That with accomadation and guidance from an early age, autistics will be able to enjoy life and contribute more to the human world.
I'm sure i am leaving out important bits.
Nora
I agree that Autism Speaks' rhetoric is deeply offensive. We were talking about this on a local board and the consensus seemed to be that the scary language is designed to drum up funds. I used to work in health and human services communications, and there was a lot of this sort of hyped up speech designed to frighten people into taking action. Just one of the many reasons I don't do it anymore.
If they had autistic people on their boards, perhaps they could rethink this. They also need to fund more diverse research, including into GFCF. A recommendation was made to do this. I wonder if they will listen.
changing a name does not change what is.
thanks Sharon, for the update. i like the new name, from a marketing perspective.
i have never checked out the uk version of autism speaks, but the one here in the us is horrible. i was repeatedly insulted for not using h-bot, gf/ cf, of other dan protocol for my child. it was a very bad experience for a parent just looking for some help and support for my child.
Really? A question mark? I wonder if they allow autistic people to have a voice in the UK organization. I was reading through their site and it seems like they are not much different from the US as far as comparing autism to cancer and cystic fibrosis (when comparing UK research expenditure). They also fund research for the Autism Genome Project "to scan the human genome in the search for the genetic causes of this devastating disorder".
I agree that autism can be a devastating disorder (not trying to start a flame war, just stating my opinion), but wish they would use their money and power to make it less devastating by learning about autistic people and finding ways to make the world a place where they can thrive, rather than by removing them from the world. Would also be nice if they acknowledged that autism is not always a devastating disorder and that many autistic people are fine as they are and others could be fine if research was geared toward working with them instead of against them.
different name, same game....so, they may have noticed the issues people have with them? But will they chge what they are doing or saying?
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