Hypermobility anyone?
I'm diagnosed with Ehlers Danlos Hypermobility Type and also have associated dyspraxia and dyscalculia. I recently started investigating whether I may also be on the autistic spectrum. Having done some research into women and autism and wandered around this site a bit, everything in me is saying, 'yes, yes, yes'. It's really a no-brainer, and I'm now looking at getting diagnosed (age 49). I know that there is a connection between Ehlers Danlos / Hypermobility and autism. I'm wondering if anyone else here has both. As a result of ED / HM and the proprioceptive anomalies associated, I have difficulties in experiencing a body boundary (and a history of eating disorders); this ties into my need for lots of space, sparse social contact and plenty of downtime, so for me personally, the two conditions are not really two but completely interwoven.
Yes, it sounds as if there is Ehlers Danlos / Hpermobility Syndrome in your family. It often goes undiagnosed, even when it has become problematic. For me, the body boundary difficulties play into autistic ways of being, so it becomes hard to know what's what. For example, one of the reasons I find it hard to be with people for what is a 'normal' (i.e. comfortable for NTs) time is that I find it hard to maintain a sense of being boundaried and feel invaded, need to be alone to knit myself up again and create a surface.
I read about that recently. I forget what I thought about it though. I am not hypermobile, but other family members have some traits.
I was doing some reading about suites of genetic syndromes and so many "unimportant" unusual traits that my family members have (cafe au lait spots, elastic skin, joint cracking), and it made me think more about what the definition of "syndrome" is.
I wish there were a database of human traits that could be used to collect information about which genes are associated with which syndromes. And that the names for genetic "bits" were easier for me to remember.
*blong* you're a pickle -daniel pinkwater