Petition: Proposed DSM-V Criteria Unfair to Girls and Women

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Sharon
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Joined: 11/21/2009

Target:  American Psychiatric Association

Sponsored by:  Laura Paxton, Autism Women's Network Advisory Board Member

Petition  [read & sign here]

Many experts are concerned that autism often goes undiagnosed in girls. Only one girl for every four boys is diagnosed with an autism spectrum disorder.

The new version of the DSM (Diagnostic and Statistical Manual for Mental Disorders) proposes to remove the diagnosis of "Asperger's Syndrome," and include all forms of autism as "Autism Spectrum Disorder." On the surface, this may not seem to make much difference, but three criteria must all be met, one which is, "lack of social reciprocity." Most autistic girls and many autistic boys are capable of social reciprocity in some situations. This seems too vague and undefined. In addition, girls learn how to disguise poor social understanding in ways that boys do not.

Autism often goes undiagnosed in girls "because girls general aptitude for communication and their social competence helps some Aspergers girls  'pass'- they pick up on their difference and carefully mask it by mimicking other girls' speech and manner and dress." -Dr. David Skuse, M.D., Institute of Child Health at University College, London

Please let the DSM-V committee know that "lack of reciprocity" as a necessary criterion for "Autism Spectrum Disorder" could lead to greater under-diagnosis of autistic females, and thus fewer females in need of help will receive services.

299.00
Autistic Disorder

Petition  [read & sign here]


Sharon daVanport

"Great minds discuss ideas; average minds discuss events; small minds discuss people." Eleanor Roosevelt

outoutout
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Joined: 3/25/2010

Just signed it!

"You laugh at me because I'm different.  I laugh at you because you're all the same."

Temple Grandin thinks in pictures.  I think in music videos.  :)

Califmom
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Joined: 1/7/2010

Me too.

Sharon
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Joined: 11/21/2009

...me three

Sharon daVanport

"Great minds discuss ideas; average minds discuss events; small minds discuss people." Eleanor Roosevelt

Serenity
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Joined: 4/12/2010

I signed it as well.

Serenity (Mish)

Single AS/ADHD Mom of Two Sons on the Autism Spectrum

(9 1/2 yr old with Autism, 7 year old in process of AS dx)

 

 

Kiwipen (not verified)

And me... Anonymously! Tho i guess i'm not, now i've said!Laughing

asd_ gadget
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Joined: 2/10/2010

I signed it.  I don't like their communication criteria, either.  Especially because the new diagnosis is for autism in general, but some of us are more verbal than others and most clinicians don't know how to look for speech differences that are purely social in someone who is articulate.  I know there was another post about that on AWN somewhere already. 

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squirrel12356
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Joined: 1/4/2010

I agree. The more verbal you are the less likely you are going to qualify for needed services. I am struggling to qualify for any support which is just plain wrong!

Sanvean17
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Joined: 9/8/2010

Signed.

Sarah - Age 20 - Clinically Diagnosed @ Age 17 - Asperger's Syndrome

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