post I put on the Autism Society of N listserve board.

7 replies [Last post]
Genisa
Genisa's picture
Offline
Joined: 12/24/2009

something every adult with ASD would want you to know....

The Forgotten Generation: The Shameful Neglect of Adults on the Autism
Spectrum.

This should be a title of a book that everyone should read. Maybe it is already
out there. I sure hope something like it is.

Genisa
Genisa's picture
Offline
Joined: 12/24/2009

wondering what the responce will be. Am usually hesitent  when I stick up for the rights of adults on the spectrum, because I have come to realize that there are many people out there that really wish we would just "go away" .  I'm sure it will probably  be ignored.  I would write it, a book,  but wouldn't know where to start. I would rather write a book on how to  help adults with autism spectrum disorder, but is there anyone that would be interested in it. Oh..... wait. Those parents will be interested in about 10 years when their child is then an adult and there is no one that will help. 

Sharon
Sharon's picture
Offline
Joined: 11/21/2009

You're awesome Genisa!  

The thing is, adults on the spectrum are not going to go away, so all those who wish we would are waisting their time wishing!

Genisa
Genisa's picture
Offline
Joined: 12/24/2009

still waiting to see if my responses post soon. It has been 40mins. It should usually post right away. hmmm. I wonder if Yahoo is having issues again. 

Sharon
Sharon's picture
Offline
Joined: 11/21/2009

Perhaps they are - it took a bit for mine to post as well.

Genisa
Genisa's picture
Offline
Joined: 12/24/2009

they all finally posted, with the last of 4 posting today. that was more than 15 hours. that's weird. I just posted a response to that and it posted immediately. And it now states:

"Your message has been posted".

outoutout
outoutout's picture
Offline
Joined: 03/25/2010

Hmmm... if I were to guess, I'd say your first post was moderated by the list owners, then you were given full access at a later point.  I have a couple of Yahoo Groups and we do this to weed out spammers; seems to be a common practice.

Anyway, what sort of response did you get?

I belong to a couple of lists for parents of autistic children, and I always hesitate to bring up my autistic adult viewpoint because it's almost always ignored.  Even though most of these parents are not "curebies", they seem to hold some pretty asinine views about their autistic children (and, in some cases, their autistic spouses, too).  I don't fall in line and nod my head every time they talk about how haaaaaaard it is to live with people like me, so I'm not part of their little inner circle.

Ah well.  Hope you fare better!

"You laugh at me because I'm different.  I laugh at you because you're all the same."

Temple Grandin thinks in pictures.  I think in music videos.  :)

Genisa
Genisa's picture
Offline
Joined: 12/24/2009

I have belonged to this local group for about 4 or 5 years. I have come to find that most of them are NT parents with kids on the spectrum and they only see it from their  point of view. Some are open to other points of view but there are some that are adamentally stuck on their view is the only view(and I thought they say that we have that issue with only seeing things one way and not others ways. hmmmmm) Anyway. I feel that as a group of people in support of those of us with ASD's that we include all ages when it comes to fighting and advocating for what is  needed in the way of services, etc. I noticed that many parents only want to Advocate for kids, that are their around their childs age. When thier kids are 2, they want early intervention for kids 3 and under and that is all they will advocate for. They wont fight for a common cause. A better life for all of us, no matter what our age. When it comes to advocating for those of us that are over 21, much of their support rapidly deminishes to less than a handful. Whatever happened to a whole group standing strong for all, not just for a few special interests. really lets you know who is really there for you.