What is Community Advocacy?

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Savannah
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Hi guys! This is your director of Advocacy writing, and I wanted to let you know what this Section is and isn't for, and some rules specifically for this section (you should also adhere to the Forum Rules, of course.)

What Is Community Advocacy?

Community Advocacy is, of course, advocacy that you do in the community. This ranges from taking on an issue with a policy at the local school board to State level work such as sitting on a board or protesting in your state capital about a state policy. You are representing more than one individual with community advocacy, often in hopes of changing a rule or policy that effects the community in some way. Or you may be organizing a group of individuals on the same issue in order to speak out about a local issue.

What is not Community advocacy is a specific case, unless it is being used to organize around an issue. National level work is, for the convenience of this site, not included in this section. For more info on what does not go here, click here.

Formatting

In order to keep this area easy to access, please follow the following guidelines when you post. If you don't, you won't be penalized- I can always move things or ask you to add or delete things- but it will make things easier to find.

  • If you are posting about a local or state level issue, please put the postal abbreviation for the state in the Subject line. For example, If there was an open meeting of the PA Autism Bureau, I'd post Autism Bureau Open Meeting, PA
  • If you are posting something that only effects a specific county, parish, or region, make sure that is clearly stated within your post. For example, if there was a meeting for my County's Children's Roundtable, I would write in my post at the top "In Venango County" or for a regional Roundtable, "Northwestern PA"
  • If it is a meeting that repeats, do not post a new thread- instead, update the old one. Topic changes (Such as having one session be about seclusion and restraint and the next about Child Services involvement) do not require another thread. Meeting types or changes in Audience, however, do.
  • You may Start another thread if the meeting usually doesn't have a big speaker and they bring in someone special. For example, when the Children's Roundtable of Venango county brought in Judge Pratt of Indiana to discuss a new practice, it was a bigger deal and was open to anyone in the state, so that would get it's own thread instead of being under the "Venango Children's Roundtable" thread.
  • If you are looking for info or are stuck on something, Please include the words "Help" or "looking for" in the subject line along with the state and the subject. 
  • Feel free to post impressions about a specific meeting you attended in its own thread- so long as there hasn't already been an impressions thread on that same meeting by another user. 

What doesn't belong here

  • Requests for personal advocates. We have another section for Offering or Requesting Advocacy services for an individual. You may of course use this area to organize individuals on a larger issue- for example, if several people realize they have issues with the same policy or issue and choose to come together instead of fighting alone- but not for individual cases.
  • Chat about a larger advocacy issue. For example, if you want to discuss the subject of seclusion and restraint- or national level policy- you should go to the Issues and Hot Topics section. But if there is a meeting  you'd like to post about ON a larger issue or state specific issue, this is the right place for it.
  • Things that belong in other sections, like talking about a fan petition for your show or advocacy for non-autism related subjects (Example: PETA, Comic book defense league, Starving kids in Africa, etc.) I WILL allow things that are somehow related to ASD, or will have irrelevant topics moved. 

If You need to contest something, please PM me instead of posting to the thread. This will hopefully cut down on drama. Cool

 

*This is still being worked on. If you have suggestions or feedback, please let me know.

Savannah Nicole Logsdon-Breakstone Director of Advocacy quote

Genisa
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Joined: 12/24/2009

Does ANYONE do community advocating for adults.  It seems that only kids get anyone to advocate for them. No one wants to deal with us Adults. I am so frusterated right now.

Savannah
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I do some community level advocacy, as does Paula Durbin-Westby and a woman named Sam in VA. I do a lot of policy work here in pa on the subject. And I think ASAN-PDX has done some local advo work in OR?

I think ti's actually harder to find a Personal advocate for adults than a community advocate.

BTW, you were the one that recently attended an Autism conference or something recently, weren't you? this could be considered some community advo work. 

I'm HOPING that my co-submission with Paula to discuss becoming an effective community advocate at Autreat gets accepted. I think that the skills from there are useful for helping anyone get into advo work, adult or children's systems. I think, though, that because NTs find children's issues more sympathetic it is easier to get into children's issues though.

Savannah Nicole Logsdon-Breakstone Director of Advocacy quote

Genisa
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Joined: 12/24/2009

How do I get my states Department of Health and Human Services and Medicaid to accept  Aspergers as a diagnosis, and to pay for transportation to needed appointments with thearpist. I live in the metro area  of the biggest city  in Nebraska, but my city  has no specialists or thearpist for adults tht have Aspergers/autism ,that accept Medicaid. I drive 115 miles round trip to my appt. everytime I go. I can't afford it. I had to pay for our food for this last week on my credit card. We have parents who are advocating for "all of our children", but there is no one to push to get anything passed for those that area older than 21. If I am not able to get to my appointments, then I feel as if the door to my future has been slammed shut in my face. I want to move forward with my life, but there are so many things that are preventing me from getting there. That is what my thearpist is supposed to be for. To help me help myself get there. Without it, what kind of future is there for me? the government can't support me forever.

Savannah
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Joined: 12/7/2009

Genisa, can you post a new thread on this issue, with NE in the subject line? I know in PA, we have the "Adult Autism Waiver". maybe it would  be worth pushing for it for NE? 

Savannah Nicole Logsdon-Breakstone Director of Advocacy quote