[witty title goes here]

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aurtist
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Joined: 6/17/2010

thank you for this space.

and hello!

I'm 33, diagnosed with AS in 2009. Not sure that's all that's going on, but the more I hang out at my local AS group and read -- especially the increasing amount of stuff on *women* and ASDs, I am definitely dwelling somewhere on the spectrum.

I also have diagnosed Central Auditory Processing Disorder. Mainly, I can't filter out background noise, trouble distinguishing between certain words especially when the person is talking quickly, and I seem to have "below average" sequencing memory.

That's all I know so far with all that. I'm exploring more.

I'm Canadian, and recently married someone I met on a group discussion forum over 3 years ago. I recently immigrated to the US and got my green card this month! I'm adjusting to the big changes all of this involves, but not quickly or all that well. I feel a great deal of stress and I am currently working on advocating more for myself and getting supports in place.

I am really depressed and I know that some of this is changes like moving to a new country, trying to navigate a totally foreign health care system, adjusting to living with my spouse (we didn't really get a good go at living together before marriage, which is not necessarily bad, but it's challenging. We're in counselling). But I'm also depressed at a deeper level with all the stuff I'm discovering about disabilities I have and what feels like the "loss of my potential". I feel pretty worn down and exhausted, and seeing how my social and communication difficulties have impacted my life has been overwhelming.

I used to be this "gifted, genius-level, talented, quiet but quirky nerd" person who had so many choices, and yet I see how the traumas in my life, my being so quiet and good masked my problems. Especially the silence, isolation, and depression I felt from being "smart" but "trapped under glass", having to work so hard to do what came so easily to others, feeling like something was wrong on some deeper level but having no way of verbalizing it. I think I had depression from age 8 and in grade 5 a teacher expressed concern, that perhaps I was bored or something. I got a second gifted assessment, but back then the idea of being gifted (which I was, maybe at the low end) and also learning disabled wasn't on the radar. Aspergers definitely wasn't. I guess I'm kind of grieving the person I thought I could be. Rather unproductive, but it's where I'm at.

I fit the "typical" bill of the AS girl who has less narrow and intense interests than the diagnosis suggests, and is highly sensitive, intense and emotional (which now makes me a neurotic and drama kind of woman), had a few friends, and didn't cause any behaviour problems... My adolescence feels like lost years, as I fell into a hole because of abuse that happened (and if it didn't happen, I suppose I wouldn't have developed typically anyway).

Gah. I could go on, but I will move to some positives: I am a quiet person who cares a lot about other people. I'm a great yoga teacher, artist, and lover. I get along well with kids (up until about age 8). I am insightful and empathic in many ways, even though I can't understand social nuances and subtexts. I love music, but I can't hear the lyrics, so my experience sometimes feels like it resides in the purest realm of sound. I love the thick, buttery sound of a french horn. I love dissonance and resolution. .

I took (and loved) anthropology in graduate school and I love contradiction in ideas. I sometimes think in black and white, but I love the grey. I love the messiness of life, the discomfort that happens because everything doesn't fit neatly together. I love disruption. Right-wing thought, or any 'camp' that tries to define the world in absolute terms, in good and bad, demonizing the alternative viewpoints as lies) disturbs me because it does not seem to account for realities existing in opposition to one another but still existing. I love Foucault's notion of power. I love the idea of "power with" instead of power as a zero-sum game. I like poetry even when I don't understand it. Kind of like music, in that sense. I love the musicality of words. But I also love poetry that speaks something. Stuff that drips with all kind of things that aren't explicit. Things that I can't put into words, necessarily, but I grok them all the same.

And what can I tell you my brother, my killer
What can I possibly say?
I guess that I miss you, I guess I forgive you
I'm glad you stood in my way.

If you ever come by here, for Jane or for me
Your enemy is sleeping, and his woman is free.

Yes, and thanks, for the trouble you took from her eyes
I thought it was there for good so I never tried.

--Leonard Cohen

~Aurtist
(taking trouble from my eyes, or at least trying, so it's not there for good)

 

 

Peace, aurtist

Kiwipen
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Joined: 5/26/2010

Wow. Your whole post is so poetic! I can so identify with much of what you say, the whole 'being so quiet and good it masked my problems', also being 'trapped under glass', and having to 'work so hard to do what came so easily to others', feeling like 'something was wrong but having no way to verbalize it'... You could be writing about my life!! I too am highly sensitive (which i find a pain in the ass sometimes), i can be highly emotional too, and i like to think of myself as caring and if not empathic, as that is defined by the 'experts', at least sympathetic, compassionate and caring. Well, i try to be!!Laughing

Your genuine actions speak for themselves, your conformity says nothing.

Sharon
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Joined: 11/21/2009

I'm pleased to see you made it over to intoduce yourself Aurtist.  Like Kiwi stated, you have a talent of describing your life poetically.  I was taken in by the sheer power of your choice in words.

I too have some challenges with Auditory Processing and I can see how it has been my Achilles heel in many ways.  I see myself as paying a high price the older I get due to my ability to mask over the dozens of social & emotional blurred spots when I was younger.  The ability to blend in with my peers served me well in the moment, however, I find that in the long run it has done more of an injustice with respect to my social & emotional savvy.

Female specific autism is in need of greater understanding and early identification.  I am determined that all of us here at the AWN will do just that as we move forward with the view to educating our communities, families, educators, and professionals about these important facts.

I'm looking forward to your posts here at the forum.  Welcome to AWN! (and congrtats on receiving your green card!)

aurtist
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Joined: 6/17/2010

Thanks Kiwipen and Sharon!

I agree, Kiwipen, maybe not empathic, but all of those other words for sure :)

Sharon, I feel like I have to unlearn some of those 'masking' behaviours. Like the tendency to pretend I heard something when I didn't. It's a lousy coping mechanism, hanging in and hoping that I can fill in the blanks with what I do hear later in the conversation. It definitely impacted how much I could pick up on the nuances of social communication with my peers. I could never understand how girls treated each other. I'm not sure that if I could process speech better that they would've made more sense.

I'm also not sure that if we took away the auditory processing problem early early on, that I would've been savvy, or that it wouldn't have been more traumatic because I'd have picked up on all the bad names kids called me. I got teased, but I have a feeling I missed some of it because of my obliviousness Embarassed

Glad to be here, and I will try to contribute where I can. Maybe first, self/personal advocacy. Because that is really challenging at the moment.

Peace, aurtist

Serenity
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Joined: 4/12/2010

Welcome Aurtist. I'm a female Aspie and single mom of two boys from Canada. I'm currently involved with a wonderful HFA man from Australia. I have found this site quite useful and it's nice to find others that have similiar experiences that we can relate to. I hope you enjoy it here. :)

Serenity (Mish)

Single AS/ADHD Mom of Two Sons on the Autism Spectrum

(9 1/2 yr old with Autism, 7 year old in process of AS dx)

 

 

outoutout
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Joined: 3/25/2010

Welcome, aurtist!

I'm a 31-yr-old Aspie with 2 young children (HFA and probable-AS).  I grew up in America, but moved to Australia about 7 years ago to be with my wonderful NT partner. 

I can SO totally understand the depression that comes from moving to a new country, having to learn to live in a completely new society and navigate a new way of doing things... I went through all of that too, and sometimes I think I'm still going through it.  I can also understand the feelings that come from "discovering about disabilities I have and what feels like the 'loss of my potential'".  This (for me, anyway) is the downside of knowing what I am.  I've been fighting not to become defined by it.  I want to say, "I'm an individual and we ALL have our quirks and our difficulties!  Not everything I do should be seen through a giant Autistic Prism!"  If only I could internalise that.  Hmmm.

Anyway, sorry for the tangent there... hope to talk with you more soon!  Cool

 

"You laugh at me because I'm different.  I laugh at you because you're all the same."

Temple Grandin thinks in pictures.  I think in music videos.  :)

Kiwipen
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Joined: 5/26/2010

I too have some challenges with Auditory Processing and I can see how it has been my Achilles heel in many ways.  I see myself as paying a high price the older I get due to my ability to mask over the dozens of social & emotional blurred spots when I was younger.  The ability to blend in with my peers served me well in the moment, however, I find that in the long run it has done more of an injustice with respect to my social & emotional savvy.

 I feel like I have to unlearn some of those 'masking' behaviours. Like the tendency to pretend I heard something when I didn't. It's a lousy coping mechanism, hanging in and hoping that I can fill in the blanks with what I do hear later in the conversation. It definitely impacted how much I could pick up on the nuances of social communication with my peers. I could never understand how girls treated each other. I'm not sure that if I could process speech better that they would've made more sense.

I'm also not sure that if we took away the auditory processing problem early early on, that I would've been savvy, or that it wouldn't have been more traumatic because I'd have picked up on all the bad names kids called me. I got teased, but I have a feeling I missed some of it because of my obliviousness Embarassed

And once again, this could all be written about my life! The number of times i have simply smiled and pretended i knew what was going on, hoping that things would become clear if i just shut up and listened carefully, or at least that they wouldn't realize i was totally lost... EmbarassedCry

Your genuine actions speak for themselves, your conformity says nothing.

liberrygrrl
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Joined: 7/2/2010

Lot on your plate these days, Aurtist! (love the username by the way!) I'm partnered to a probable AS so I'm still in the learning stage of all this. What struck me about your post was how you talked about music "I love music, but I can't hear the lyrics" as my partner loves music but doesn't listen to the lyrics...I love music but enjoy singing to it and it's the lyrics that helps me get in touch with my emotions. Thank you for being so open and sharing what's going on in your life.

 

Liberrygrrl

Riayn
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Joined: 5/11/2010

Welcome to the forum Aurtist.  You have put into words what I think most of us feel and so eloquently too.

I hope you and your husband can work through your challenges so that your home and your relationship can be a place of calm and safety for you as you navigate the challenging world that is out there.